Thursday, 29 December 2011

VIDE 3

WEDNESDAY 30th NOVEMBER:

Today saw the start of the 3rd round of chemotherapy. The anti-sickness program was altered this time, again, because Joni-Mai does not tolerate her chemotherapy too well. It makes her very sick and despite being on a high dose of anti sickness medicines she still gets very poorly. The week went by fairly quickly, with Joni-Mai presenting the ward with gifts that she'd bought for the play room and other children to use at their beds (with money that Gramma had raised by shaving her head!!), there were some Nintendo 3DS consoles, lots of toys from the Disney store and LOADS of activity packs for children to use at night time when the play room was closed and the play specialist had gone home. We also went out while Joni-Mai was in for her medicine and bought some 3D games for the 3DS (with money from Francesca's Boutique!!!).

Joni-Mai tricked us into thinking that her new anti-sickness program was working. It wasn't, though. Two days in and Joni-Mai got VERY sick, this - in turn - made her not want to eat or drink and we had a battle on our hands. By the time Saturday had arrived, and we were due to go home, Joni-Mai was refusing any food and drink and the Doctors at UCLH had decided to transfer her to Queen's to administer more anti-sickness and possibly fit her with an NG tube (Nasogastric tube). Unfortunately there was not a lot left that I could do to persuade her to eat or drink and I was slowly resigning myself to the fact that we were going to spend yet more time in hospital. This was until one of the magical nurses, Shola, whispered something into Joni-Mai's ear and she slowly started to nibble some crisps and gently sipped some milk. This was enough to save us a trip to hospital and an NG tube fitted. Joni-Mai returned home on the 3rd of December, very tired and feeling very poorly.

Joni-Mai and her friend, Elin - another Ewing's patient at only 5 years old, defying the odds!

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