TUESDAY 13th DECEMBER:
Today Joni-Mai had an appointment for an ECHO at Great Ormond Street Hospital. This was to check that her heart was still functioning properly after her first 3 courses of chemotherapy. Chemotherapy medicines can have a negative effect on the major organs in the body and so, they need monitoring on a regular basis to ensure this is not happening. If there were problems, the chemotherapy regime would have to be altered to stop any negative effects progressing.
Thankfully, Joni-Mai's heart is still very strong and she will continue on the same strength drugs.
After leaving GOS, we made our way to UCLH to settle down in preparation for Joni-Mai's vas-cath fitting in the morning. A VAS-CATH is a Venous Access Catheter - similar to her PICC line, it allows access to her veins so that they can take blood out and also return it at the same time (by means of blood transfusion).
Tonight, Joni-Mai has spent most of her time playing nurses and taking people's blood pressure and temperature. She has decided that she wants to be a nurse when she's older and I don't blame her. She's looked after by the best nurses I have ever met and they are brilliant role models!
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