TUESDAY 8th NOVEMBER:
So, last night I was informed that Joni-Mai wouldn't be starting her chemotherapy on time due to her file being lost. Computers were saying they were somewhere they were not and everyone was searching frantically for a file that was nowhere to be found.
Today started with yet more searching and profuse apologising, lots of people in different parts of the hospital looking for a file that didn't want to be found. Without the file, they couldn't start the chemotherapy as there were no consent forms, so, after signing a new form and expressing my worries (about her anti sickness drugs more than anything else) they started her medicine, 24 hours later than originally planned! Joni-Mai had a nice easy day, she spent the morning playing with the other children on the ward and the afternoon in the school room. She had some visitors today (thank you Nanny & Katy) and got to spend some time with her baby sister, Daisy.
Our ongoing battle with food and getting her to eat has once again, decided to rear its ugly head. We spent over an hour at lunch time trying to get her to eat and about the same, again, at dinner time. She has even started to refuse Macaroni Cheese, which is somewhat disheartening -particularly as it is about the only thing that she has decided to eat for the last month(ish). So we are welcoming any food ideas to try with her - please send any suggestions my way!!!
After everyone had left and Joni had settled, she began complaining of a tummy ache. The dreaded sickness has returned, despite being on a higher nausea management program. The poor dot was very poorly. It seemed that all the time we spent getting her to eat today was wasted! We had started to watch The Nightmare Before Christmas before she got sick but she went to sleep shortly after taking some anti sickness medication.
She's fast asleep now, I have just watched Sleeping Beauty on my own without so much as a flinch from Joni-Mai - I know she's poorly if she won't watch a film with me!
I have also had news on some fabulous items for the fundraising event, if you would like more info on how to get involved please go to
So, last night I was informed that Joni-Mai wouldn't be starting her chemotherapy on time due to her file being lost. Computers were saying they were somewhere they were not and everyone was searching frantically for a file that was nowhere to be found.
Today started with yet more searching and profuse apologising, lots of people in different parts of the hospital looking for a file that didn't want to be found. Without the file, they couldn't start the chemotherapy as there were no consent forms, so, after signing a new form and expressing my worries (about her anti sickness drugs more than anything else) they started her medicine, 24 hours later than originally planned! Joni-Mai had a nice easy day, she spent the morning playing with the other children on the ward and the afternoon in the school room. She had some visitors today (thank you Nanny & Katy) and got to spend some time with her baby sister, Daisy.
Our ongoing battle with food and getting her to eat has once again, decided to rear its ugly head. We spent over an hour at lunch time trying to get her to eat and about the same, again, at dinner time. She has even started to refuse Macaroni Cheese, which is somewhat disheartening -particularly as it is about the only thing that she has decided to eat for the last month(ish). So we are welcoming any food ideas to try with her - please send any suggestions my way!!!
After everyone had left and Joni had settled, she began complaining of a tummy ache. The dreaded sickness has returned, despite being on a higher nausea management program. The poor dot was very poorly. It seemed that all the time we spent getting her to eat today was wasted! We had started to watch The Nightmare Before Christmas before she got sick but she went to sleep shortly after taking some anti sickness medication.
She's fast asleep now, I have just watched Sleeping Beauty on my own without so much as a flinch from Joni-Mai - I know she's poorly if she won't watch a film with me!
I have also had news on some fabulous items for the fundraising event, if you would like more info on how to get involved please go to
Or to purchase raffle tickets for a £50 voucher to spend in Francesca's Boutique in Hornchurch, please visit:
Thank you all for all the support and for reading about Joni-Mai x
One food idea - rather than offering her meals, always have snacks around for her to graze on. Cereal bars, crackers, breadsticks, fruit, dry cheerios in a cup etc. I think if she's feeling sick, lots of little nibbles will be easier for her than meals. xxxxxxxxxxxx
ReplyDelete