Our First Trip to UCH!

WEDNESDAY 12th OCTOBER:
Today, we made our first trip to UCLH where we were to meet our new doctor, have another MRI and a chest CT scan.

We started our day by finding a bed in the window, where we had a wonderful view of London (up on the 11th floor, it was AMAZING!!), we spent some time looking out and pointing out things like Primrose Hill, St. Johns Wood, Camden etc. We met a play specialist called Emma (who is just lovely!!) and lots of lovely nurses (Charlee & Charlotte being Joni-Mai's favourites!). After a short while we were taken to meet Dr. Maria Michelagnoli, a specialist in sarcoma and a super dooper children's oncologist. She was amazing, such a wonderfully calm woman who spoke in a way that was pleasant for Joni-Mai but for us - Mummy, Daddy & Gramma - too! We were called out of our meeting early for Joni-Mai to have some "Wibbly wobbly medicine" - an oral sedative - so she would lay still for her whole body MRI scan. The medicine worked fairly quickly and while we were waiting for her scan, one of the doctors put a cannula in, for Joni-Mai so they could take some blood samples later on. Joni-Mai (understandably...) is extremely needle-phobic and so, screamed the ward down.

After her cannula, her MRI and her chest CT scan it was time for us to make the journey back home, to sunny Essex!