One of the biggest things, with having all the drugs, is that you wee an awful lot. Which has to be monitored, and one of the only ways they can monitor the wee is to have her wee in a jug every time she needs to go!! Joni-Mai thinks it's brilliant that she gets to do something as funny as weeing in a jug. This is also a down side, because she is awake all throughout the night - to use the loo. The chemo drugs are also making Joni-Mai feel a bit sick. We think it's when she is given the Doxorubicin as the only time she has been sick during her course of chemotherapy is during and after the Doxorubicin.
It's a little strange that for the duration of her little life, we have been cautious with our use of medicines like paracetamol or ibuprofen. She has only ever had one course of antibiotics to treat a chronic ear infection and yet we sit and watch them pump drug after drug into her tiny little body. It is disheartening to see her go from a happy bouncy little girl to a pale, skinny little girl who doesn't want to eat or drink. It breaks my heart to see her suffer, but as I have said before, it is a necessary evil!
No comments:
Post a Comment